What’s New? Or…Wow summer is almost over and…..

DSC02364June was a busy month in the world of PAYA Cancer Advocacy Work. I joined fellow PAYA Cancer Stakeholders  (parents, survivors, doctors, lawyers, and social workers) from all over the country to walk on Washington DC for Childhood Cancer Action Day. We visited our State Legislators to encourage them to support  (1) The Caroline Pryce Walker Conquer Childhood Cancer Reauthorization Act (2) The Childhood Cancer Quality of Life Act, (3) the Patients Access to Treatments Act, (4) The Federal Fund for Childhood Cancer Research, and lastly (5) we encouraged our House Representatives to join the Congressional Childhood Cancer Caucus, chaired by Representatives McCaul  (R-TX) and Van Hollen (D-MD).

Also during our time in Washington DC I was pleased to participate in the Coalition Against Childhood Cancer (CAC2) Symposium. Dedicated individuals collaborated to form CAC2 to ensure that the best possible treatments and cures are made available to our children. Many of these people have lost a child to cancer, or, like myself, have a child who survived this horrible disease. I am sure you can imagine the intensity of emotions generated at the three day long event.

It is my hope that our visits to Washington DC continue to make a positive impact on our legislators. We will return as often as needed to ensure that proper legislation is enacted to protect our families from this horrible disease!!!

SUPPORTING PEDIATRIC ADOLESCENT AND YOUNG ADULT CANCER RESEARCH CANNOT BE IGNORED.

OUR CHILDREN (YOUNG AND OLD) SHOULDN’T SUFFER….

Below are photographs of many wonderful advocates who participated in Childhood Action Day!!!

ALSO, DON’T FORGET THAT SEPTEMBER IS CHILDHOOD CANCER AWARENESS MONTH!!!

WE WILL NOT REST UNTIL THERE IS A CURE!!!

FIGHT!

CONQUER!

CURE!!!

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