Karen E. Mumford Cancer Foundation
Karen E. Mumford cancer foundation (KEM) is a national nonprofit organization that provides financial assistance and debt relief to cancer patients for their revolving expenses. In addition, it strives to broaden general awareness of the impacts of cancer by way of counseling, presentations, and research funding.
For more information contact: Nathan Mumford at Nathan@kemfoundation.org or www.kemfoundation.org
Meredith A Cowden Foundation
The Meredith A. Cowden Foundation raises funding for research and awareness of the blood cancers, as well as Graft vs. Host Disease (GvHD), a condition that is a complication of a bone marrow transplant. GvHD can be an acute or chronic condition and, sadly, can be fatal if not controlled properly. Through our events, we have raised funds for leukemia researchers, who work to discover new and effective ways to combat the disease and avoid the side effects of current treatments.
For more information contact: Gerald and Marti Cowden at www.cowdenfoundation.org
The SAMFund
The SAMFund provides grants and scholarships to young adult survivors to help supplement money that was lost during treatment. The grants and scholarships we provide help pay for transitional issues such as education, living, job search and lingering medical expenses. We will partner with existing organizations to provide the best support possible so that these young adults can not only survive, but truly move forward.
Grants & Scholarships | How to Help | News & Events | Resources | Donate
The Gathering Place
The mission of The Gathering Place is to support, educate and empower individuals and families touched by cancer through programs and services provided free of charge.
For more information contact: Ellen Heyman, MSN, RN, CS, Director or Programming or Kristina Austin, MSED, LSW, Director of Community Outreach and Marketing at www.touchedbycancer.org
Be The Match National Marrow Donor Program
They help patients afford transplant, find a matching donor and build a future as we advance medical research.
For more information contact: Kari Bailey, Manager, Office of Patient Advocacy at www.marrow.org
LiveStrong
Demand Media and the Lance Armstrong Foundation built LIVESTRONG.COM as the definitive daily health, fitness and lifestyle destination. The Lance Armstrong Foundation (LAF) unites people to fight cancer, believing that unity is strength, knowledge is power and attitude is everything. They provide the practical information and tools people battling cancer need to live life on their own terms. They take aim at the gap between what is known and what is done to prevent death and suffering due to cancer. They engage the public at large to pursue an agenda focused on preventing cancer, ensuring access to screening and care, improving the quality of life for people affected by cancer, and investing in needed research. Founded in 1997 by cancer survivor and champion cyclist Lance Armstrong, the LAF is located in Austin.
For more information visit: http://www.livestrong.com
Planet Cancer
Planet Cancer was founded by young adults in their twenties; either in the midst of or barely out of treatment for cancer. Not only had they endured the incredible indignity of a cancer diagnosis in what should have been the best years of health, they had also all suffered from an immense void in services and support for young cancer patients. The majority of the other patients they encountered were separated by mental, emotional and physical lifetimes. As young adults with cancer, they felt that they had fallen through the cracks, and they wanted to reach out to others having the same experience.
For more information visit: www.planetcancer.org
National Cancer Institute
The National Cancer Institute (NCI) is part of the National Institutes of Health (NIH), which is one of 11 agencies that compose the Department of Health and Human Services (HHS). The NCI, established under the National Cancer Institute Act of 1937, is the Federal Government’s principal agency for cancer research and training. The National Cancer Act of 1971 broadened the scope and responsibilities of the NCI and created the National Cancer Program. Over the years, legislative amendments have maintained the NCI authorities and responsibilities and added new information dissemination mandates as well as a requirement to assess the incorporation of state-of-the-art cancer treatments into clinical practice. This site has a wealth of information.
For more information visit: www.cancer.gov
People Against Childhood Cancer
Our mission is to raise awareness of Childhood Cancer. Together, we can accomplish more. We know that 1,000 voices are louder than 1. That we must achieve a critical mass where our advocacy voice will be heard by the media, corporations and organizations that can help PAC2 raise awareness and direct funding to research to cure childhood cancer. We will each set aside our own personal goals, need for recognition, jealousies and egos. We are doing this for the kids. We will work together on Initiatives that are developed and implemented collaboratively.
For more information visit: http://curechildhoodcancer.ning.com/
Curesearch
Curesearch is the largest childhood cancer research organization, the Childrens’ Oncology Group, and the national Childhood Cancer Fondation through its mission to cure childhood cancer.
For more information visit: www.curesearch.org
Official Fitness Pro
OFP is dedicated to providing the most up to date and professional service possible. Each OFP professional is an expert in their various areas of health and fitness. OFP experts often work together with the same clients. HIRING OFP IS THE SAME AS HIRING A TEAM OF EXPERTS TO ASSIST YOU. OFP offers individualized and group fitness training, and nutritional counseling. The staff is dedicated to finding each client an individualized training program.
For more information contact: Jeremy Dancy at http://www.officialfitnesspro.com/ or call 440-829-3743
Other Resources
Support and Disease Information
Brain Tumor Foundation
Getting the best, most up-to-date information is critical for making informed decisions about treatment and living with the best quality of life possible.
National Brain Tumor Society (NBTS) is a nonprofit organization committed to finding a cure for brain tumors. We aggressively drive strategic research, advocate for public policies that meet the critical needs of the brain tumor community, and provide patient information. Headquartered in Watertown, Massachusetts, with offices in San Francisco, California and Wilmington, Delaware, we host activities throughout the United States.
Formed in 2008 by the merger of two leading organizations that had served the brain tumor community, the National Brain Tumor Foundation and the Brain Tumor Society, the National Brain Tumor Society is now the largest brain tumor nonprofit organization in the country. Both legacy organizations had been formed in the 1980s by parents and other people who were committed to increasing both research funding and access to resources specific to brain tumors. In 2010, the Kelly Heinz-Grundner Foundation, a Delaware-based organization, joined NBTS as a wholly-owned subsidiary. Founded in 2005, after the death of Kelly Heinz-Grundner to a brain tumor, the group has contributed to NBTS's efforts to pursue research and public policies that benefit the brain tumor community.
Learn more about our research initiatives, public policy advocacy efforts, and patient information. If you’d like to get involved, volunteer, make a gift, or if you have a questions, contact us at 800.770.8287 or visit our contact us page.
Fertility Issues
An excellent resource for information on fertility issues for cancer fighters is Livestrong/Fertile Hope. Connect with an Oncofertility Specialist. For more information contact: Livestrong.org/Get-Help or call 855.220.7777
Or TALK TO YOUR ONCOLOGIST!
Imerman Angels
Imerman Angels carefully matches and individually pairs a person touched by cancer (a fighter or survivor) with someone who has fought and survived the same type of cancer (A Mentor Angel). Cancer caregivers (spouses, parents, children and other family and friends of fighters) also receive 1-on-1 connections with other caregivers and survivors. These 1 to 1 relationships inspire hope and offer the chance to ask personal questions and receive support from someone who is uniquely familiar with the experience. The service is free and helps anyone touched by any type of cancer, at any cancer stage level, at any age, living anywhere in the world.
877.274.5529 or visit the website at: www.imermanangels.org
Jeremy Cares
Founded in 2011, Jeremy Cares Inc is a 501(c)3 non-profit organization with a mission to enrich the lives of families with children dealing with serious illnesses by promoting emotional and social healing by working with other local organizations to support and help the families regain feelings of control, improve self-image, and to diminish the stresses that illness creates for the entire family. This is accomplished by partnering with other facilities in Northeastern Ohio that provide medical care or support to the families.
Through the support of our fundraising efforts, we have been able to provide Holiday Gifts to the families of over 40 patients, their siblings, and their parents at Rainbow Babies & Children’s Hospital. We have also been a proud sponsor of a family room at the Cleveland Ronald McDonald House which will provide housing to approximately 37 families that need a place to stay while their child is being treated at one of the area hospitals.
109 Tomahawk Drive, Avon Lake, Ohio 44012
440-933-9146
Neuroendocrine Tumors (NETS) Information
Caring for Carcinoid Foundation
The mission of the Caring for Carcinoid Foundation (CFCF) is to discover cures for carcinoid cancer, pancreatic neuroendocrine cancer, and related neuroendocrine cancers. CFCF also works to eliminate the suffering of patients, families, and caregivers affected by neuroendocrine cancers.
To achieve rapid discovery of a cure, CFCF directs 100% of all individual donations to fund breakthrough scientific research of carcinoid and related neuroendocrine tumors. This is made possible by the generous support of its Board of Directors and corporate sponsors.
Since its inception, CFCF has awarded over six million dollars in research grants to leading scientists at renowned research institutions. Along with its focus on research, CFCF is committed to supporting patients, families, friends and caregivers by providing them with complete and up-to-date information.
This organization works with the National Cancer Institute.
198 Tremont St, Box 456
Boston, MA 02116
http://www.caringforcarcinoid.org/
Let’s F Cancer! AND learn about late stage cancer diagnosis!
Putting an end to late stage cancer diagnoses and start the dialogue now! Stay on top of your cancer screenings!!!
For more information call: 1.604.569.3322 or email info@letsfcancer.com
Visit their website: www.letsFcancer.com
Leukemia & Lymphoma Society
Their mission is to cure leukemia, lymphoma, Hodgkin’s disease and myeloma, and improve the quality of life of patients and their families.
The LLS provides a host of services for survivors and their families. For more information contact:
Locally: 23297 Commerce Park
Cleveland, Ohio 44122
1.216.910.1234
Or toll free: 1.800.589.5721
Or Visit: www.lls.org/noh
mAsskickers: this aint no pity party!
mAss Kickers Foundation believes that to see tangible results in the war on tumors/cancer, we should USE THE K.U.R.E. when dealing with an intimating tumor/cancer diagnoses. Use KNOWLEDGE, PROMOTE UNITY, AND SUPPORT RESEARCH and EMPOWER yourself. Use the K.U.R.E is an excellent strategy to combat any diagnosis for people currently dealing with a tumor/cancer because ALL TUMORS SUCK!!!
Check out this unique site!!! At www.mAssKickers.org
mAss Kickers Foundation
1950 Camino De La Reina #312
San Diego, CA 92108
Amanda Hitt: Patient Research Coordinator
Amanda.hitt@mAssKickers.org or at 858.997.6461
Mesothelioma Center
The Mesothelioma Center has the most up to date and comprehensive information regarding Mesothelioma on the web today; with information ranging from a complete list of symptoms, to treatment options and steps to take after a diagnosis.
For more information please contact: www.asbestos.com/mesothelioma/
Team Shan
Breast Cancer awareness for young women. Funded by rethink breast cancer
Testicular Cancer Society
The testicular Cancer Society raises awareness for the common form of cancer in men age 15-35 years. They are dedicated to increasing awareness and education about the disease and providing support for fighters, survivors, and caregivers.
Visit: www.testicularcancersociety.org
Or contact Mike Craycraft R.Ph. (Survivor/Founder)
561.703.1788 or email him at mike@testicularcancersociety.org
The Colon Club
The Colon Club was founded in 2003 by Molly McMaster, a colon cancer survivor who was diagnosed on her 23rd birthday, and Hannah Vogler, whose cousin and Molly’s friend, Amanda Sherwood Roberts, died of the disease at the age of 27. Our main goal is to educate as many people as possible, as early as possible, about colorectal cancer in interesting and out-of-the-box ways. Our wishes are for people to have “colon talk” in their everyday lives, to know the risk factors and symptoms, and to get screened when it is appropriate for them.
For more information:
Visit: www.colonclub.com
Or
The Colon Cancer Alliance
Helpline: 1.877.422.2030 or visit: www.ccalliance.org
The Liddy Shriver Sarcoma Initiative
The mission of the Liddy Shriver Sarcoma Initiative is to improve the quality of life for people dealing with sarcoma. The Initiative increases public awareness of sarcoma, raises funds to award research grants, and provides support and timely information to sarcoma patients, their families, and medical professionals. These efforts are achieved through collaboration with numerous individuals and organizations that share a similar vision.
The Liddy Shriver Sarcoma Initiative
17 Bethea Drive
Ossining, New York 10562-1620
Phone: (914) 762-3251
Fax: (914) 941-9181
Young Survivor Coalition: Young women facing breast cancer together.
61 Broadway, Suite 2235
New York, NY 10006
877.YSC.1011 (toll-free)
646.257.3000
CAREER INFORMATION
Cancer and Careers
This organization is dedicated to empowering and educating people with cancer to thrive in their workplace by providing expert advice, interactive tools and educational events.
Many free publications available.
For more information contact:
MULTI-MEDIA RESOURCES
BOOKS
Everything Changes: The insider’s Guide to Cancer in Your 20’s and 30’s by Kairol Rosenthal
For more information and to visit her blog go to: www.everythingchangesbook.com
Reversal: When a Therapist Becomes a Patient, by Eric Galvez
For more information and to visit Eric’s blog: http://www.ericgalvezdpt.com
FILM AND MORE
Chasing Rainbows Young Adult Cancer Advocacy
Their goal is to discover and distribute multi-media resources for young adults living with cancer.
Visit: www.chasingrainbows.ca for an extensive list of multimedia resources for AYA’s with cancer and their families!
A few films listed on the website:
Chasing Rainbows: Young Adults Living With Cancer (Chasing Rainbow Production, 2006)
I Don’t Have Time For This! (Big Coat Productions, 2010)
Wrong Way To Hope (Hands On Films, 2010 – 2011)
Dancing with N.E.D*: Six Cancer Surgeons on a Rock n Roll Mission (Spark Media)
*(N.E.D = No Evidence of Disease)
Re-Mission – A Video Game for Teens
A video game that gives young people with cancer a sense of power and control over their disease. It’s a fun, effective tool that supports treatment adherence and can be used in the clinical setting or at home by patients on maintenance therapy. Re-Mission is rated T for Teen.
There are two versions. The early version is available for download from their website. There is also a more recent version. PLAY! FIGHT! WIN!!!
To order games go to: www.re-mission.net
These games have been create by Hope Lab (www.hopelab.org)
ADVENTURE OPPORTUNITIES FOR AYA SURVIVORS
First Descents
First Descents offers young adult cancer fighters and survivors (ages 18 to 39) a free outdoor adventure experience designed to enable them to climb, paddle and surf beyond their diagnosis, defy their cancer, reclaim their lives and connect with others doing the same.
Our programs are all over the country and range anywhere from 1 day to 1 week. Any YA with cancer is eligible regardless of physical challenges, diagnosis or prognosis!
Phone: 303.945.2490
Fax: 303.474.3005
info@FirstDescents.org
6000 Greenwood Plaza Blvd.
Suite 120
Greenwood Village, CO 80111
SURVIVE AND THRIVE
Survive and Thrive Expeditions Inc. is dedicated to combining travel, adventure and in-depth reflection and exploration of the cancer journey into one unique life changing experience.
We are going to the GRAND CANYON! Spend 7 days traveling 188 river miles on a motorized raft through the majestic Grand Canyon, each day stopping to explore a new side canyon, Puebloan ruin, waterfall or aqua blue stream. Survive & Thrive Expeditions is partnering with Hatch River Expeditions to provide a special once in a lifetime trip for young adult cancer survivors. A part from exploring the unbelievable landscape this trip will focus on living better post-treatments as well as how to tell your story and be an effective advocate for our young adult cancer survivor peers. The trip will explore practical skills, such as guided meditation, building life mission statements and storytelling, as well as real life examples of survivors who have been able to turn their painful cancer experience into something that has inspires and changes lives. Matt Ferstler (www.singlejingles.org), Mike and Bonnie Lang (Directors of STE, www.wrongwaytohope.com, www.ebbflowstory.com) and a mystery presenter will be facilitating the evening discussions.
Contact Us
Feel free to contact us by phone or email.
403.923.8032
139 Woodhaven Bay SW, Calgary, AB T2W 5S2
The Always Keep Pedaling Foundation
To provide young adults in financial need with the means to use adventure sports, athletics, and adaptive sports to energize a comeback from cancer.
The AKP Foundation
65 East Branch Farms
Manchester Center, VT 05255
www.akpfoundation.org
