June was a busy month in the world of PAYA Cancer Advocacy Work. I joined fellow PAYA Cancer Stakeholders (parents, survivors, doctors, lawyers, and social workers) from all over the country to walk on Washington DC for Childhood Cancer Action Day. We visited our State Legislators to encourage them to support (1) The Caroline Pryce …
SAVE THE DATE – 2013 CHILDHOOD CANCER ACTION DAY IN WASHINGTON, DC Children’s Cause for Cancer Advocacy (CCCA), a member of the Alliance for Childhood Cancer, is pleased to announce that this year’s Childhood Cancer Action Day in Washington, DC is scheduled for June 17-18, 2013. This year, members of the Alliance for Childhood …
Last Friday I attended the Cowden Foundation GVHD Symposium in Cleveland, Ohio. Oncology Researchers, Physicians, Nurses, Bone Marrow Transplant Survivors and Caregivers/Families participated in this highly informative event. Both professionals and lay people sat together and learned about the most current research in the field of Graft Vs. Host Disease (GVHD), a sometimes life …
Thoughts from the Cowden Foundation GVHD Symposium Read More »
WASHINGTON, D.C. – U.S. Senator Pat Toomey (R-Pa.) yesterday cosponsored a bipartisan resolution designating the third week of January 2013 as Teen Cancer Awareness Week. The resolution is sponsored by Sen. Bob Menendez (D-N.J.). “Cancer is the leading cause of death from disease for teenagers between the ages of 15 and 19, and it is …
Sen. Toomey Cosponsors Bipartisan Resolution For Teen Cancer Awareness Week Read More »
Background There are over 350,000 survivors of childhood cancer in the United States today. Two-thirds of these individuals are likely to experience at least one late effect of treatment, and almost one-fourth will face a late effect that is serious or life-threatening. Childhood cancer survivors may face a range of late effects of their disease …
Survivorship: Pediatric, Adolescent, and Young Adult Cancer Survivorship Act Read More »
StevenCare: Insurance for Young Adults Under Age 26 Ed note: This was originally posted on healthcare.gov The health care law, the Affordable Care Act, is giving young people like Steven Giallourakis, a bass player, pianist and two-time cancer survivor from Cleveland, the tools they need to fight for their health. At the same time, Steven’s mom Angie …
