Advocacy

Thoughts from the Cowden Foundation GVHD Symposium

  Last Friday I attended the Cowden Foundation GVHD Symposium in Cleveland, Ohio.  Oncology Researchers, Physicians, Nurses, Bone Marrow Transplant Survivors and Caregivers/Families participated in this highly informative event. Both professionals and lay people sat together and learned about the most current research in the field of Graft Vs. Host Disease (GVHD), a sometimes life …

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Sen. Toomey Cosponsors Bipartisan Resolution For Teen Cancer Awareness Week

WASHINGTON, D.C. – U.S. Senator Pat Toomey (R-Pa.) yesterday cosponsored a bipartisan resolution designating the third week of January 2013 as Teen Cancer Awareness Week. The resolution is sponsored by Sen. Bob Menendez (D-N.J.). “Cancer is the leading cause of death from disease for teenagers between the ages of 15 and 19, and it is …

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September Is Childhood Cancer Awareness Month

There is a movement happening in our country. A movement to increase public awareness about Pediatric, Adolescent and Young Adult Cancer. Part of that movement is currently involved in the establishment of a centralized event calendar to inform the public about upcoming Childhood Cancer Awareness Programs.  Please take a moment and visit this link:  http://curechildhoodcancer.ning.com/page/pac2-september-2012-national-childhood-cancer-awareness-event-cal?xg_source=msg_mes_network …

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First Descents Provides Life Changing Experience for Steve G!

From the First Descents Website: “During the First Descents experience, young adult survivors and fighters are empowered through conquering legitimate outdoor challenges to push their limits and face their fears, and by doing so, they are able to regain the confidence and self-efficacy lost to cancer. First Descents places an emphasis on each individual’s experience and provides the right …

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Survivorship: Pediatric, Adolescent, and Young Adult Cancer Survivorship Act

Background There are over 350,000 survivors of childhood cancer in the United States today. Two-thirds of these individuals are likely to experience at least one late effect of treatment, and almost one-fourth will face a late effect that is serious or life-threatening. Childhood cancer survivors may face a range of late effects of their disease …

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