The Steven G AYA Cancer Fund was represented at two important events: The 2nd International GVHD Symposium in Cleveland, OH and The YA Alliance Conference in Austin, TX. We listened, shared and learned from dedicated professionals. committed advocates, and inspiring survivors!!! What a wonderful way to get the word out that : We will not …
(Steven and Dr.Alex) I am very thankful to God that Steven is two and half years out from his bone marrow transplant. Overall he is doing well. He is able to enjoy his life as a 21 year old who lives independently, attends college, plays in a rock band, …
To Contact Your Legislator Click on the Link Below. http://www.legislink.com To read the President Obama's response click on the whitehouse.gov link. http://www.whitehouse.gov/the-press-office/2011/10/31/executive-order-reducing-prescription-drug-shortages
JUST A REMINDER THAT THE GVHD SYMPOSIUM FOR PROFESSIONALS, SURVIVORS AND THEIR FAMILIES WILL TAKE PLACE NOVEMBER 4TH, 2011. THIS IS AN EXCELLENT OPPORTUNITY TO LEARN ABOUT THE LATEST GVHD RESEARCH! PLEASE SEE PREVIOUS POST AND EVENTS CALENDAR FOR MORE INFORMATION!! SEE YOU ON THE 4TH!
Congressional Legislation Details Title as Introduced: Creating Hope Act of 2011 – A bill to expand and strengthen the FDA's priority review voucher incentive program relating to rare childhood diseases, including cancer Bill Number: S.606 Description: The Creating Hope Act has bipartisan support and does not require taxpayer funding. In the past 20 …
Creating Hope Act of 2011: Tell your representative!!! Read More »
On March 6, 2006 our 15 year old son Steven was diagnosed with Stage Four Osteosarcoma. My husband and I were welcomed into a world that is a parent’s worst nightmare. Being told that our lives were never going to be the same is an understatement. Since that initial diagnosis we witnessed our son struggle …
In a article published in Journal of Adolescent and Young Adult Oncology researchers have reported that AYA’s (adolescents and young adults) with ALL (acute lymphoblastic leukemia) have had better responses to pediatric oncology treatment vs. adult oncology treatment. For a complete description of the study and findings read the attached article. Pediatric Treatment Approach to Improve …
SEPTEMBER IF ALMOST OVER AND CHILDHOOD CANCER IS STILL THE LEADING CAUSE OF DEATH OF CHILDREN IN THE UNITED STATES OF AMERICA. FOR THE STATISTICS CLICK ON THE LINK BELOW. https://acco.org/Information/AboutChildhoodCancer/ChildhoodCancerStatistics.aspx
In a recently published paper by Dr. Archie Bleyer, the survival trends of individual cancers among AYA's (adolescents and young adults) indicate that survival rates have not significantly improved when compared with children and older adults. Males seem to survive less than females. Issues could be due to socio-economic factors, being less likely to adhere …
NEED TO EDUCATE THE PUBLIC THAT CANCER SURVIVAL RATES FOR AYA’S NOT IMPROVING!!! Read More »
Here are three articles reporting on the amount of carcinogens being pumped into our environment. If you are as disturbed by the increase in the number of PAYA's (pediatric, adolescents and young adults) with cancer then take the time to read the articles. Thanks, Angie ToxicPollutionandHealth2007OH EnvOH-OzonePollutionReport-Mar2011 Consider_Ohio
